Resources
“Illness is the night side of life, a more onerous citizenship. Everyone who is born holds dual citizenship, in the kingdom of the well and in the kingdom of the sick. Although we all prefer to use the good passport, sooner or later each of us is obliged, at least for a spell, to identify ourselves as citizens of that other place.” Susan Sontag, Illness as Metaphor
Dear reader,
Here are some articles, books, and organizations that you may find helpful and/or interesting. This is not a comprehensive listing. Please note that these are independent sites, and their inclusion here does not represent an endorsement of their content, point of view, accuracy, products, or activities.
Best to you,
Karen Winkler, Ph.D., M.S., R.N.
ARTICLES and BOOKS
On being chronically ill – writers’ personal reflections
Five Things I Wish I’d Known Before My Chronic Illness
Disability: Essays, art and opinion exploring the lives of people living with disabilities.
I’m Chronically Ill and Afraid of Being Lazy
In My Chronic Illness I Found A Deeper Meaning
New York Times column: patient voices
On Telling Ugly Stories: Writing With A Chronic Illness
How My Chronic Illnesses Changed My Relationship To My Body
On psychotherapy:
Childhood Trauma Leads to Lifelong Illness—So Why Isn’t the Medical Community Helping Patients
How To Give Your Therapist Feedback
The Best Places On The Internet for People of Color to Talk About Therapy
The Secret To Finding A Therapist You Vibe With
On chronic illness:
Childhood Disrupted: How Your Biography Becomes Your Biology, and How You can Heal
In the Kingdom of the Sick: A History of Chronic Illness in America
Medical Apartheid Isn’t Some Far-Off Myth
Top Tips To Poderosx Self-Care
ORGANIZATIONS and NETWORKS
Foundation for Women and Girls with Blood Disorders
Juvenile Diabetes Research Foundation
National Alopecia Areata Foundation
National Fibromyalgia Association
National Organization for Rare Diseases
The Betes Organization (diabetes)
MEDITATION and MINDFULNESS